Like a baby...

She is so freaking cute... still so much like a baby though in so many ways too. Today we had to take a trip over to the PCP for a high fever. Was a long day which resulted in some antibiotics for her and some cultures sent off. She still has a weird smell in her trach that just does not smell like it should... we shall see what and if something is growing in it.

Yesterday she was fussy and wouldn't fall asleep until after 12. Today I let her play for an hour, she was rolling all over her room, then gave her a bath lotioned her down with Lavender baby lotion, then changed her trach & ties. After which she watch a little tv while she was being feed and given all of her meds. By the time we got to teeth brushed and vent hooked up she was OUT.

No Nurse tonight, just hubby and I with her overnight and I have to work tomorrow for 5 hours. Hope she has a good day with him.


It seriously takes this much stuff to go anywhere.


PS... Our license is officially open and supposedly we are on the open beds list for vendor calls and for CPS emergencies... so now we are just waiting on the call.

A Few days...

Well it's been pretty busy here the past few days. I've had to work so I haven't gotten a whole lot of time with her, but she is surprising me with how much potential she has and how much she can actually do. I have also learned she is NOT used to being held at all. Honestly I don't think she got any cuddle time by the former foster mom, not even with her nurses. I know that will change while she is here. Right now we have two GREAT nurses for her and they are very good with her. Hubby and I also hold, talk to, and kiss her cheeks a lot. We want her to feel loved and connected and a part of the family. We were able to do it with "I" in the short time we had her, I am hoping for Everley to be bonded to us too.

She also smelled soooo bad when we would visit her and when we got her. That may have also been another thing that was keeping me at arms length with her... I don't know for sure on that one, but it was hard to kiss and cuddle "stink". She smells sooooo much better now. Like a clean baby! Go figure what medicating properly for excessive secretions and giving her a bath daily will do for you. Seriously she smelled sooo bad! Her nails were thick, long and crusty too.

Tomorrow I have a million and one things to do to get her settled in. I need to firstly get her school set up. I need to get all of her doctors called and change the contact information with them and make appointments maybe even perhaps get orders from them for her care for the nurses. I also need to get her therapists set up here, which may include having to get a whole new agency. I also need to get more supplies for her ordered. I already got all of her medications changed and ordered. Then I can pass along a checklist for the nurses to fill out when we need something and teach hubby how to do it.

When you do medical foster care, or assume the care of a medically complex child there is so much that needs to be done and so many people that need to be coordinated with that is for sure.

Gotcha Day

So yesterday we actually picked up Miss Everley... like I said I was changing her name from her original name. Which she will now be known as Everley on social media and the like.

Things went well with the transition. She has seemed to be enjoying her new room and new tv. The nurse for her is very nice and has a lot of experience. I hope she stays.

We are still in the process of settling in everything, I have a million and a one phone calls to make and so much stuff that needs to be coordinated for her. I have to call the school, the doctors, the therapists, and the medical supply company. I also need to get in touch with CPS and licensing.




In other news...

I did not see our license verification come over yesterday online, but that doesn't mean it isn't done. Hopefully it is and we will get another call soon too. It's been too long without a placement so we need to be full ASAP.

Finally after 3 months

Our new license has been submitted to the state for review and approval. Here's hoping that by next week we are FULL!

What does a new worker mean to you?

That one more person has no f clue what is going on, and one more person who will delay transition again!

Signed off

Licensing agency has said they have completed the amendment and are submitting to state. The DDD has finally received all of the sign offs from various training agencies and has signed off. CPS, or whatever we call it these days requested a date from me so they can sign off.... So.....

Special delivery

Her crib was delivered today.


Apparently the vent training paperwork has not been sent to DDD nurse yet, which at this time is the only hold up. This WILL be done!

The sad part is....

That this agency STILL hasn't completed and sent the information over to the state yet. It's always it'll be so quick. Then one more thing they need from us, or lost from the first time, or changed a policy on...or,or,or... URGH!!

Is it any wonder that I have VERY little faith in this agency to actually do what they need to do or provide what we need for them to provide? I swear this new Case Manager is even more vapid than the last and has left me with a certainty that we are in fact changing agencies over the the one my friend uses as soon as they finally post our amendment to our license.

Either way, despite having completed the hoops that we need to jump through to bring little "E" home... not all of the i's and t's have been even given their respective dots and crosses from the medical agencies or passed along the proper channels to the DDD nurse sign off on. Yet again another STATE agency in this state that has a dropped the ball on something they should have been over seeing. I have been the one facilitating all of this... it's supposed to be MY licensing worker or the home finder at the very least who makes sure that the process has been moving forward and at least be aware of the fact that the scheduled transition is for next week!

Today we needed to update a rabies vaccination and submit another fire evacuation plan to the agency (we haven't moved since the last one). The vaccination has expired though by two days so that is my bad. We also have our checkoff's with the current Nursing Agency supervisor for "E"s care. We have to prove that we can provide her care with no prompting! Seriously though, vent and trach aside...she's pretty straight forward... or is it just that I have been doing this type of nursing for over 3 years and the clinical stuff is second nature... it's the Mom stuff that takes a little more time... of course when we were doing all of those visits with "I" they just come naturally... Once a Mom always a Mom... we just know things :-)

What I learned today

March is severance for E. Yet currently her biomother has full legal custody of her, so what that means is that yes she could actually stop the transition. I kinda knew this, which is why honestly I have no huge "hopes" for this one. Kinda like burn me once...never get burned twice,

We are still moving forward though, I think she just wants to know that we will remain in contact with her after the adoption.

By the 21-24thish

Training tomorrow, training next Thursday. Maybe we will have some forward progress? Hubby is sick this week, so is he quitting working now or not? Who knows what is gonna happen, but it is a way to access some money we need.

A few steps forward

Finally got a hold of the vent lady. Training and set up will be on this Friday.
This Friday is also the "last" step in the changing the license phase. Perhaps we are finally getting closer to having a placement again. I am wary to say a forever placement because well because.

If it's not one thing it's another

Why does there have to be so much shit surrounding this process? Yet again delayed the licensing change. At this rate, people just now taking the PSMAPP course will have CDH placements before us. This agency is SOOOO fired as soon as they finally submit the last of the required paperwork. I am so over it!