Friday, January 31, 2014

Like a baby...

She is so freaking cute... still so much like a baby though in so many ways too. Today we had to take a trip over to the PCP for a high fever. Was a long day which resulted in some antibiotics for her and some cultures sent off. She still has a weird smell in her trach that just does not smell like it should... we shall see what and if something is growing in it.

Yesterday she was fussy and wouldn't fall asleep until after 12. Today I let her play for an hour, she was rolling all over her room, then gave her a bath lotioned her down with Lavender baby lotion, then changed her trach & ties. After which she watch a little tv while she was being feed and given all of her meds. By the time we got to teeth brushed and vent hooked up she was OUT.

No Nurse tonight, just hubby and I with her overnight and I have to work tomorrow for 5 hours. Hope she has a good day with him.


It seriously takes this much stuff to go anywhere.


PS... Our license is officially open and supposedly we are on the open beds list for vendor calls and for CPS emergencies... so now we are just waiting on the call.

Wednesday, January 29, 2014

A Few days...

Well it's been pretty busy here the past few days. I've had to work so I haven't gotten a whole lot of time with her, but she is surprising me with how much potential she has and how much she can actually do. I have also learned she is NOT used to being held at all. Honestly I don't think she got any cuddle time by the former foster mom, not even with her nurses. I know that will change while she is here. Right now we have two GREAT nurses for her and they are very good with her. Hubby and I also hold, talk to, and kiss her cheeks a lot. We want her to feel loved and connected and a part of the family. We were able to do it with "I" in the short time we had her, I am hoping for Everley to be bonded to us too.

She also smelled soooo bad when we would visit her and when we got her. That may have also been another thing that was keeping me at arms length with her... I don't know for sure on that one, but it was hard to kiss and cuddle "stink". She smells sooooo much better now. Like a clean baby! Go figure what medicating properly for excessive secretions and giving her a bath daily will do for you. Seriously she smelled sooo bad! Her nails were thick, long and crusty too.

Tomorrow I have a million and one things to do to get her settled in. I need to firstly get her school set up. I need to get all of her doctors called and change the contact information with them and make appointments maybe even perhaps get orders from them for her care for the nurses. I also need to get her therapists set up here, which may include having to get a whole new agency. I also need to get more supplies for her ordered. I already got all of her medications changed and ordered. Then I can pass along a checklist for the nurses to fill out when we need something and teach hubby how to do it.

When you do medical foster care, or assume the care of a medically complex child there is so much that needs to be done and so many people that need to be coordinated with that is for sure.

Tuesday, January 28, 2014

Gotcha Day

So yesterday we actually picked up Miss Everley... like I said I was changing her name from her original name. Which she will now be known as Everley on social media and the like.

Things went well with the transition. She has seemed to be enjoying her new room and new tv. The nurse for her is very nice and has a lot of experience. I hope she stays.

We are still in the process of settling in everything, I have a million and a one phone calls to make and so much stuff that needs to be coordinated for her. I have to call the school, the doctors, the therapists, and the medical supply company. I also need to get in touch with CPS and licensing.




In other news...

I did not see our license verification come over yesterday online, but that doesn't mean it isn't done. Hopefully it is and we will get another call soon too. It's been too long without a placement so we need to be full ASAP.

Thursday, January 23, 2014

Finally after 3 months

Our new license has been submitted to the state for review and approval. Here's hoping that by next week we are FULL!

Wednesday, January 22, 2014

What does a new worker mean to you?

That one more person has no f clue what is going on, and one more person who will delay transition again!

Tuesday, January 21, 2014

Signed off

Licensing agency has said they have completed the amendment and are submitting to state. The DDD has finally received all of the sign offs from various training agencies and has signed off. CPS, or whatever we call it these days requested a date from me so they can sign off.... So.....

Friday, January 17, 2014

Special delivery

Her crib was delivered today.


Apparently the vent training paperwork has not been sent to DDD nurse yet, which at this time is the only hold up. This WILL be done!